ALBUQUERQUE, N.M. (KRQE) – It's a rare genetic disorder that impacts a small population, and due to limited research, much remains unknown about treating adrenoleukodystrophy. Now, there's a new multi-million-dollar fund looking to advance what could be life-saving research. "He was six days old when it first initially happened," said Taylor Hall, the mother of 10-month-old William, who was diagnosed with the disease. "[It's] not something we've ever encountered before, it was unexpected, of course," said Albuquerque City Councilor Renee Grout, William's grandmother. William's parents, Taylor and Tyler Hall, received the heartbreaking news just days after he was born. "It was devastation, honestly, and just confusion," Taylor Hall explained. Doctors diagnosed William with adrenoleukodystrophy, or ALD for short. ALD is a rare genetic disease that the United States Library of Medicine says affects about 1 in 20,000 people. It can impact cognitive ability, mobility, and can be fatal if left untreated. However, an early screening when William was born gave the Halls the heads-up they needed to prepare for the road ahead. "Our doctor in Boston, his advice was live life like he's a perfectly normal baby as he is today, and we'll monitor him and find out as time goes on," explained Tyler Hall. William has more doctor visits than most children, but his parents said he's able to live life like any other child. Some of those visits consist of doctors taking MRIs of him to monitor any changes in his brain. If changes are found, the parents say, that may result in their child needing a bone marrow transplant. Story continues below Weather: How long will the snow last in New Mexico? Community: Albuquerque Fire Rescue crews heading out to fight California wildfires National: Jimmy Carter honored with state funeral in DC before Georgia burial Due to its rarity, research and funding are limited. However, the Hall family is helping others impacted by the disease by starting a multi-million-dollar fund called "Will to Cure ALD" to advance research and possible treatments. "The end goal is to have treatment options for, not just William, but all the other families out there," Tyler Hall said. They hope to raise $3 million and have donated $1 million in hopes of increasing treatment options, conducting clinical trials, and providing grants for further research. They've raised nearly $2 million as of Thursday, according to the website. "Really, I'm just trying to soak this up, we're just trying to soak it up this time we have with him because the baby years go by so fast," Taylor Hall added.